top of page
Broke Inlet 20092013 (1 of 1).jpg

International Arthrofibrosis Association

Our aims are to

  • Connect “best practice” evidence-based treatments and recent research with physicians, care providers and patients.

  • Create a movement and a community where we can support and learn from the experiences and insights of each of us.

  • Advocate for arthrofibrosis research and education.

  • Provide scientifically referenced and up to date information about arthrofibrosis to promote better outcomes.

Couple by the Water
shutterstock_396850228.jpg

Mission

Our mission is to provide scientifically referenced information about arthrofibrosis to promote better understanding and outcomes.
Become a member, share your story and join the arthrofibrosis movement. We can help each other by sharing information. By shining a light on arthrofibrosis and raising awareness about it in our community we will take a stand against the devastation it causes.

Get Involved

shutterstock_609423461.jpg
Image by Aman Pal
Nurse preparing patient for CT scan in hospital room.jpg

Join the IAA

Become a member, share your story and join the arthrofibrosis movement. We can help each other and take a stand against arthrofibrosis by shining a light on this devastating and invisible condition.

Social Media

Awareness starts with connection. Every follow, every like, and every share helps push arthrofibrosis out of the shadows. 

Tag @arthrofibosis.info in your #arthrofibrosis posts.

  • Facebook
  • X
  • Youtube
  • LinkedIn
  • Instagram

Support the IAA

Your contribution helps us raise awareness, support patients, and advance research into arthrofibrosis. As a registered non-profit organisation, donations may be tax-deductible.

1Y7A5679.jpg
IMG_9643.jpg

Sign the Petition

Help us stop more people from suffering disabling and painful arthrofibrosis by signing. With enough signatures we can lobby medical associations and governments in a number of countries.

Stick with us

Show your support with exclusive IAA pins and stickers from our merchandise store. Order pins, stickers, and more—100% of the price goes to visibility, with no surplus added by the IAA.

Share your Story

Share Your Story with the IAA. Your story can inspire and guide others facing similar challenges. Tell us about your struggles, treatments, and coping strategies.

Interview
with
Dr. Usher

Georgios Mavropalias interviews Dr. Kayley Usher about arthrofibrosis. Kayley has a research background in immunology and microbiology. Drawing on her scientific understanding of fibrosis, Kayley wrote a review paper called “Pathological mechanisms and therapeutic outlooks for arthrofibrosis”, published in Nature Bone Research in 2019. Since this time she has provided scientifically referenced information about the drivers of arthrofibrosis and treatment options.

“Arthrofibrosis literally means fibrosis of a joint and it can affect any joint."

 

“And it's essentially a wound healing response that doesn't stop when it should, so when healing is finished it should stop. But that wound healing response keeps going. It becomes pathological.”

 

“It's actually created by a special type of cell called myofibroblasts and these are normal cells that get transformed into this new kind of phenotype, and these create the internal scar tissue in the joint and they create adhesions and contractions.“

 

“Inflammation promotes fibrosis and then once it's going for too long, there’s always feedback effects that kick in between inflammation and fibrosis and it becomes self-perpetuating. So it becomes very, very difficult to resolve.”

 

“The impact of arthrofibrosis depends on which tissues are affected in the joint. Any of the tissues in the joint can be affected. So you can get fibrotic nerves, tendons, muscles, all of that.”

 

“They can be just sent away and told there's nothing wrong, or they might even be blamed for it, for non-compliance in physiotherapy, which is a common one.”

 

“I get a lot of people saying I feel gaslighted and traumatised by those kind of responses.”

 

“We also need society to be aware so that family understand, because quite often family don't understand and there's no obvious outward signs of what's wrong.”

waterlilys-200321-2-of-2-768x855.jpg

"Act as if what you do makes a difference. It does"

William James

Contact International Arthrofibrosis Association

Thanks for submitting!

Legal Disclaimer

The materials presented in this site are provided voluntarily as a public service. It is of a general nature, based on the scientific literature. The information and advice provided is made available in good faith but is provided solely on the basis that readers will be responsible for managing their own assessment of the matters discussed herein and that they should verify all relevant representations, statements and information. Please consult your doctor.

©2022-2025 by International Arthrofibrosis Association.

bottom of page