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Hi .. I have just discovered this site in my search for possible answers for my symptoms.

I have had knee issues all my life. I had my first arthroscopy age 17. Seven more followed over the years with chondroplasty, debridement and lateral release procedures, then PRP injections and finally a TRKR in July 2023 (at 46 years old) as my OA was very advanced by this stage (bone on bone with spurs).

I lost all quad function for 5 weeks and struggled with my bend. I had intensive physiotherapy both with the NHS (I'm in the UK) and privately, with little improvement. I achieved around a maximum 70 degree bend before an MUA at 17 weeks post op. After this MUA I halted at 90 degrees and then went backwards, again despite ongoing intensive manual therapy and sport massage,

I underwent a revision procedure at 10 months post op…

This paper concludes "Across the included studies, there was a recurring pattern of dysbiosis - notably decreased microbial diversity, reduced abundance of beneficial bacteria (e.g., Bifidobacterium, Lactobacillus), and enrichment of pro-inflammatory taxa like Ruminococcus gnavus and Prevotella species".

"The meta-analysis revealed that microbiota-directed interventions significantly improved disease activity and immune response markers in AIDs, indicating a robust link between gut microbiota composition and autoimmune pathology. In autoimmune disorders, gut microbiota is a key factor in immunopathology. Gut biology as an adjunct interventional strategy provides potential in managing these diseases. Additional studies are required to help standardize methods and identify microbial targets specific to diseases that can then be addressed through therapeutic interventions".

And "For RA, interventions such as probiotic supplementation with Lactobacillus species demonstrated improvements in DAS28 scores and inflammatory markers [31]. In MS, reduced abundance of SCFA (short chain fatty acid) producing bacteria and altered metabolic pathways were documented,…

Long story, incredibly short, my left leg has gone through two knee surgeries and two achilles surgeries in the last forty years before I had a total knee replacement on Valentine's Day 2025.

Immediately after the surgery, my leg was a dead weight and would not bend more than 5°. I was in the hospital for 5 days before I could weight bear enough to safely navigate stairs.

I had my first MUA 4 weeks after surgery, which got my ROM from 15° to 45°. The surgeon scheduled my second MUA 12 weeks after my TKR after telling me that "this is difficult for [him] too."

After the second MUA my ROM was 85° and I was desperately seeking reasons for why my knee wouldn't bend. A doctor friend suggested arthrofibrosis. My surgeon said he had known that was my diagnosis, but didn't want to treat it surgically. I started…

I was hit by a drunk driver in 2016, causing injuries that resulted in a total knee replacement in 2018. This is where my arthrofibrosis journey began, though I did not know it at the time. At age 45 my orthopedic surgeon did not want to do a replacement but all other conservative approaches had failed and my world was shrinking with pain and stiffness.

Fast forward to today as I am on the cusp of a 5th total revision out of state with my 4th surgeon, this one an expert in arthrofibrosis. All through these tough years I have had wonderful surgeons and consultants, was diligent with PT and home exercises. I’ve had 2 arthroscopic surgeries, 6 manipulations under anesthesia. One was followed with 3 days on epidural with CPM machine continuously running. I’ve tried the Dynasplints for flexion and extension. I’ve had Botox treatments in my quads and…

Hello, I had TKR on 4/1/2024 and developed severe arthrofibrosis almost immediately. I am allergic to surgical glue but there was an error made and it was used. My wound was an itchy blistered mess for a couple of weeks post op until I was able to pick the glue off. I have always had full extension but after surgery I am at about 30* flexion. I had two surgeons recommend manipulation under anesthesia but something inside told me this was wrong. I didn't do it and eventually had my records reviewed by Dr. Noyes in Cincinnati who advised me to continue with only gentle passive movement. Since surgery I have had massage by an orthopedic massage therapist/reflexologist who initially helped with lymphatic drainage and swelling. I'm finally beginning to feel like my arthrofibrosis is changingand beginning to loosen a bit. I know I have a long road ahea…

Hello all. Happy to have found this group and looking for any support or insight. I had an ACLR 5/2022 and 11/2022 had a second surgery for LOA, ended up with CRPS in my recovery. Fast forward and 11/2024 after much debate had another LOA. I had descent ROA and most of my scarring was medial/inferior and in Hoffa's fat pad. I had significant pain from a medial scar that was causing a bony defect in the femur. My surgeon (for this last surgery) is very familiar with arthrofibrosis and took an appropriate multidisciplinary approach. I felt well for the first few months and have taken recovery very slow (6 wk crutches, CPM 8 wk, gentle PT and slow progression with weight training/load) but unfortunatley over the last month (with no inciting event) I feel that my symptoms are returning (pain/stiffness, loss of extension, increased swelling). This happened last time…

The IAA warmly welcomes our new IAA Ambassador, Dr Seweryn Krzywoń from the Czech Republic! We look forward to collaborating with you to help arthrofibrosis patients and spread awareness.

Kayley

The IAA is delighted to welcome Megan Reese as an Ambassador! Megan is our first USA Ambassador and is committed to helping patients feel informed, empowered, and less alone in their journey with arthrofibrosis. You can read Megan’s story here https://azure-playroom-824.notion.site/Megan-s-Story-16053e39f35880fa9619f5f930bcb4d5

The IAA is incredibly proud of our passionate and enthusiastic Ambassadors who work to spread arthrofibrosis awareness and education. The first online meeting of Ambassadors was held recently, with all IAA Ambassadors attending (see screen shot, thanks Barbara!), getting to know each other and sharing great ideas. Thank you everyone!! I look forward to talking with you again.

Kayley